March 10, 2010
1 Comment

Cytokinetics Announces Orphan Drug Designation Granted to CK-2017357 for the Treatment of Amyotrophic Lateral Sclerosis

A new potential treatment on the horizon. I’m so excited! Cytokinetics, Incorporated (Nasdaq: CYTK) announced today that its fast skeletal muscle troponin activator, CK-2017357, has been granted orphan-drug designation by the U.S. Food and Drug Administration (FDA) for the potential treatment of amyotrophic lateral sclerosis (ALS), also commonly known as Lou Gehrig’s Disease. CK-2017357 is [...]

Read the full article →
March 8, 2010
0 Comments

ALS SOD1 Trial: A ‘Watershed Moment’ | Quest Magazine Online

  Isis Pharmaceuticals of Carlsbad, Calif., has begun a phase 1 clinical trial of its experimental compound ISIS-SOD1-Rx in people with familial (inherited) ALS caused by toxic SOD1 protein molecules. “This is a watershed moment,” said R. Rodney Howell, a metabolic disease specialist and chairman of the MDA Board of Directors. “More than 30 people [...]

Read the full article →
February 15, 2010
2 Comments

Call For Stem Cell Trial

Few weeks back I posted about first stem cell transplant in ALS patient. Last week I got a call from Emory University to take part in the trial. It’s a phase 1 trial, so it means they are testing safety of the procedure and it might not benefit me. I’m checking with my doctor whether [...]

Read the full article →
February 14, 2010
0 Comments

My Care Plan

Many of my friends and relatives have asked me about the treatments I’m taking and my care plan. Well here it is and it’s very simple. On the medication side I take Rilutek. I don’t know how much it has helped me but I take it diligently and my doctor says that I should keep [...]

Read the full article →
January 28, 2010
5 Comments

Life So Far In 2010

My disease is relentless, whenever I feel that it has stopped progressing the very next day new symptoms appear. Now my neck muscles are starting to get weak and my breathing is getting shallow as well. For past month there have been few incidents of choking on saliva, but nothing that would scare me. I’m [...]

Read the full article →

← Previous Entries

Next Entries →