June 21, 2010
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Summer Of 2010

Well the news is not what I want to hear, exactly an year ago my breathing capacity or FVC was at 82%, and now it is at 48%. … I have to hook on to it for the night and then send it back tomorrow for reading.

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June 19, 2010
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Father’s Day

The one thing that troubles me about my illness is that who will teach my daughter the lessons that I have learned over the years? Someone suggested that I write letters to her which she can read later in her life. I tried writing but couldn’t go further than writing ‘dear’. It was just hard [...]

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May 21, 2010
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Dormant Blog

I haven’t updated my blog for quite sometime now.  But fear not, I’m back and will be updating my blog regularly.  I needed sometime to adjust to the technological changes that I need to keep up with my illness.

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April 16, 2010
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Knopp Neurosciences Presents Further Encouraging Trends in Its Phase 2 Study of KNS-760704 (Dexpramipexole) in ALS

This is really encouraging, there is going to be a new drug In the market soon. Finally an alternative to very expensive Rilutek, I’m so excited… In Part 2 of the study, 92 subjects were re-randomized to receive daily doses of 50 mg or 300 mg of dexpramipexole for 24 weeks. In addition to results [...]

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March 23, 2010
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Another Stem Cell Trial To Begin

This is awesome news! In the first federal-government-approved clinical trial of its kind in the U.S., patients with amyotrophic lateral sclerosis (ALS) will be treated with their own stem cells. The aim is to hopefully slow the progress of the fatal, neurodegenerative disease. TCA Cellular Therapy of Covington, a privately held stem-cell research and development [...]

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