ALS

February 15, 2010
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Call For Stem Cell Trial

Few weeks back I posted about first stem cell transplant in ALS patient. Last week I got a call from Emory University to take part in the trial. It’s a phase 1 trial, so it means they are testing safety of the procedure and it might not benefit me. I’m checking with my doctor whether [...]

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February 14, 2010
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My Care Plan

Many of my friends and relatives have asked me about the treatments I’m taking and my care plan. Well here it is and it’s very simple. On the medication side I take Rilutek. I don’t know how much it has helped me but I take it diligently and my doctor says that I should keep [...]

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January 28, 2010
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Life So Far In 2010

My disease is relentless, whenever I feel that it has stopped progressing the very next day new symptoms appear. Now my neck muscles are starting to get weak and my breathing is getting shallow as well. For past month there have been few incidents of choking on saliva, but nothing that would scare me. I’m [...]

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January 21, 2010
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First U.S. Stem Cells Transplanted Into Spinal Cord

And so it begins… For the first time in the United States, stem cells have been directly injected into the spinal cord of a patient, researchers announced Thursday. Doctors injected stem cells from 8-week-old fetal tissue into the spine of a man in his early 60s who has advanced ALS, or amyotrophic lateral sclerosis. It [...]

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January 20, 2010
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The Great Fall

It’s been a while since my last tumble to ground and chances of one happening were quite high. Well it happened today! I was enjoying a relaxing foot massage in a garden chair when this happened. During the massage my cousin lost control of my legs and the chair tipped backwards. In a split second [...]

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