ALS

July 27, 2010
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A Year Later

It was on this day last year that I had to take an early retirement from my job because of my illness. At that time I was bit worried as I wasn’t sure about what I’m going to do without work. But I am glad that I made the call to stop working at the [...]

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July 2, 2010
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Afternoon Nap

Today after a long time I had a nice afternoon nap. Until yesterday I could only sleep for about half an hour, but today i dozed off for two hours. I was more relaxed and energetic after today’s nap than ever before. What changed? Well yesterday I got a breathing device called BiPAP and it [...]

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June 23, 2010
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Parent Trap | This American Life

Few days back I wrote about my dilemma regarding writing letters to my daughter. A friend of mine shared this radio talk with me and it really helped. You might want to listen to it starting about at 9:40 minutes into the talk. Act One. Letter Day Saint. Rebecca was 16 years old when her [...]

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June 21, 2010
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Summer Of 2010

Well the news is not what I want to hear, exactly an year ago my breathing capacity or FVC was at 82%, and now it is at 48%. … I have to hook on to it for the night and then send it back tomorrow for reading.

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June 19, 2010
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Father’s Day

The one thing that troubles me about my illness is that who will teach my daughter the lessons that I have learned over the years? Someone suggested that I write letters to her which she can read later in her life. I tried writing but couldn’t go further than writing ‘dear’. It was just hard [...]

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