How am I Doing?

September 23, 2010
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Four Years And Counting

September marks the four year anniversary of the onset of my disease, and three year anniversary of the diagnosis. Over all these years my disease hasn’t stopped progressing and it is it isn’t showing any signs of slowing down either, but I am one tough cookie as well. I have learnt to live with it [...]

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July 27, 2010
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A Year Later

It was on this day last year that I had to take an early retirement from my job because of my illness. At that time I was bit worried as I wasn’t sure about what I’m going to do without work. But I am glad that I made the call to stop working at the [...]

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June 21, 2010
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Summer Of 2010

Well the news is not what I want to hear, exactly an year ago my breathing capacity or FVC was at 82%, and now it is at 48%. … I have to hook on to it for the night and then send it back tomorrow for reading.

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January 28, 2010
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Life So Far In 2010

My disease is relentless, whenever I feel that it has stopped progressing the very next day new symptoms appear. Now my neck muscles are starting to get weak and my breathing is getting shallow as well. For past month there have been few incidents of choking on saliva, but nothing that would scare me. I’m [...]

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December 28, 2009
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How am I doing? December Edition

There isn’t a major change from last month except that I need help with feeding now. I can still feed myself but my hand tires quickly, so I need extra help. Apart from this life is pretty good. There are banana trees and coconut trees around the house here. All this ensures that I have [...]

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