June 2009

Board Games

Yesterday few friends of mine stopped by to play board games with me. We actually ended up playing two games. The first game we tried was Axis & Allies. This one was a complicated game and took about two hours to just understand it. So we decided not to play the game. The second game [...]

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How am I doing? June edition

At the beginning of this year I wasn’t sure if I will be able to continue working beyond May. But July is almost here and I am still working. I think I can work for couple more months, but given the unpredictable nature of my illness that can change. Anyways I thank my co-workers and [...]

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Hoyer Lift

One of the equipments needed as my disease progresses is a Hoyer lift. Hoyer lift helps my caregivers to transfer me safely say from wheelchair to bed. Without this it’s very hard to transfer and there is a high risk of fall too. So yesterday Hoyer lift was added to my ever expanding arsenal of [...]

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Tissues Delivered

This past Tuesday (6/16) my mother and me went to UW to give skin tissue for generating stem cells and research. The entire process of taking tissue took about 10 mins for each of us, but it took nearly 30 mins for the research staff to explain the paper work and get our signatures. They [...]

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What is cyberchondria?

A good read, during initial phases of my symptoms I avoided Dr. Google to keep myself sane. Even though folks around me asked me to find on Google, I resisted. I am glad that I did resist. The term cyberchondria has come into use in the Internet age, and depending on whom you ask, you [...]

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