2009

December 30, 2009
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2009 In Review

I had high hopes for a new treatment/therapy in year 2009, but all I witnessed was some exciting research. Regardless, the hopes are still high for 2010; let’s just wait and watch. At the beginning of this year I wasn’t sure how my disease will progress, will it be slow or fast, will it stop [...]

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December 28, 2009
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Machine Translates Thoughts into Speech in Real Time

Some more exciting research news to end the year. By implanting an electrode into the brain of a person with locked-in syndrome, scientists have demonstrated how to wirelessly transmit neural signals to a speech synthesizer. The "thought-to-speech" process takes about 50 milliseconds – the same amount of time for a non-paralyzed, neurologically intact person to [...]

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December 28, 2009
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How am I doing? December Edition

There isn’t a major change from last month except that I need help with feeding now. I can still feed myself but my hand tires quickly, so I need extra help. Apart from this life is pretty good. There are banana trees and coconut trees around the house here. All this ensures that I have [...]

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December 12, 2009
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Research News: MicroRNA-206 Delays ALS Progression

Another interesting research news, this time it involves RNA. Amyotrophic lateral sclerosis (ALS) is a neurodegenerative disease characterized by loss of motor neurons, denervation of target muscles, muscle atrophy, and paralysis. Understanding ALS pathogenesis may require a fuller understanding of the bidirectional signaling between motor neurons and skeletal muscle fibers at neuromuscular synapses. Here, we [...]

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December 12, 2009
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New Drug: SB-509

Looks like there is a new drug in pipeline which can help me. I am so excited! Muscle function was assessed by muscle manual testing (MMT), a commonly used ALS endpoint which uses a manual method of functional assessment of 34 muscles over the whole body. In addition, a subset of subjects that showed an [...]

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